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Frequently Asked Questions

Can a man with AMN/ALD safely have children who are free from the disease?

Frequently Asked Questions - FAQs
It depends. A man with AMN/ALD does not pass along the mutated gene to his sons, so his sons will be free of the disease. All of his daughters, however, will carry the mutation.
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Can a woman carrier of ALD/AMN have children who are free from the disease?

Frequently Asked Questions - FAQs
Yes. With each conception, there is a 50-50 chance of passing on the defect on the X chromosome. If the defect is passed on, a female child will be a carrier, and a male child will have the disease. Prenatal testing can identify, during pregnancy. whether the defective gene has been passed on.
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How can a person (male/female) make certain any future children are born free from ALD/AMN?

Frequently Asked Questions - FAQs
A man who has ALD or AMN will not pass the disease gene to any sons, but all of his daughters will carry the mutation. A woman who carries the mutated gene has a 50-50 chance of transmitting the mutation in each pregnancy. To avoid passing along the gene, there are two options: in vitro fertilization with preimplantation genetic diagnosis, which would avoid implanting embryos with ALD.
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What are ALD and AMN?

Frequently Asked Questions - FAQs
Adrenoleukodystrophy (ALD) describes any of several closely related inheritable disorders that affect the adrenal glands, nervous system, and testes. Adrenoleukodystrophy is transmitted as an X-linked trait (the neonatal form is by autosomal recessive transmission and is a different disease). It results in the accumulation of long chain fatty acids in the nervous system, adrenal gland, and testes.
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Can a man have ALD/AMN if his mother/aunt/grandmother is not a carrier?

Frequently Asked Questions - FAQs
In rare cases, yes. About 5% to 7% of ALD/AMN cases arise from "de novo" genetic mutations-mutations that were not present in the child's parents.
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How can a woman find out if she is a carrier of ALD/AMN?

Frequently Asked Questions - FAQs
A screening test can identify carriers of the ALD/AMN gene with 99% accuracy. The test requires only a blood sample. Please contact Kennedy Krieger for more information on having the blood test.
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Are there any symptoms for women to be aware of for carriers of ALD/AMN?

Frequently Asked Questions - FAQs
Yes. Although women who carry the ALD gene mutation do not develop the brain disease, some display mild symptoms of the disorder. These symptoms usually develop after age 35, and primarily include progressive stiffness, weakness, or paralysis of the lower limbs, numbness, pain in the joints, and urinary problems.
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What research is taking place on ALD and AMN?

Frequently Asked Questions - FAQs
One group at the University of Minnesota has used a combination of stem cell transplantation and therapy with a drug called Mucomyst, approved by the FDA to treat cystic fibrosis and acetaminophen overdose. This was tried on three boys whose disease had already progressed past the point when bone marrow transplant is generally thought to be effective. So far, MRI scans show no further progression of the disease, and the approach is being tried in additional patients.
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If any person in the family has ALD, AMN, or is a carrier, who else in the family should be tested?

Frequently Asked Questions - FAQs
It depends on their relationship to the person who has ALD. For example, if a boy has ALD, his mother should be tested for the mutation, as should all of his siblings. His mother's siblings-especially sisters-should be tested as well, since they may also have inherited the ALD mutation and be at risk for passing it on to their children. Genetic counselors can best advise you as to who in your family should be tested.
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What is the prognosis and life expectancy of a man with AMN?

Frequently Asked Questions - FAQs
It depends on the type of AMN that he has. In some people, AMN affects the spinal cord only, while in others, it affects both the spinal cord and the brain. About 54% of patients with AMN have normal brain function, while the other 46% have some type of brain involvement. Magnetic resonance imaging (MRI) can determine if the brain is affected by the disease. Patients without cerebral involvement have a significantly better prognosis than those in whom the brain is affected.
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How can a man have AMN if his mother/aunt/grandmother is not a carrier?

Frequently Asked Questions - FAQs
In some unusual cases-about 5% to 7% of all cases, according to research published by the late Hugo Moser, M.D., a pioneer in ALD studies-ALD arises from "de novo" mutations-genetic mutations that were not present in the parents.
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What are the children with Canavan disease like?

Canavan Research Illinois - Frequently Asked Questions About...
All children with Canavan disease are severely disabled... they are unable to hold up their heads, sit, walk, or talk. Even with profound physical challenges these children are like any other children in many ways. They are happy, smart, and love their friends and families.
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Do children get Crohn’s disease?

Crohn's Disease Frequently Asked Questions (FAQs)
IBD is often diagnosed during young adulthood, but about 150,000 of the 1.4 million patients with IBD in the United States are among children under age 17. Pediatric Crohn’s disease presents unique challenges in that it can interfere with a child’s growth and development as well as school, social, and family life. Treatment for pediatric Crohn’s is similar to that of adult Crohn’s.
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Can Metal-Free safely be used on children?

BodyHealthDetox.com | Detox the Body | detoxification, remov...
In our clinic we have successfully used Metal-Free on children and babies. However, the supervising practitioner must be fully capable of testing and monitoring the patient to ensure he/she is detoxing metals properly.
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Can Immunoplex be safely used by someone with an auto immune disease?

About Us ~ Healing Leaves
Yes – Immunoplex has been seen to be successfully used by many people who suffer from auto immune diseases. Immunoplex not only stimulates the immune system to function more efficiently, it also modulates the immune system so that it can function correctly.
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Do children ride free?

Las Vegas Monorail - FAQs
Children five and under ride free and must be able to be carried through the fare gates, accompanied by an adult passenger who has a paid fare. Strollers are permitted. All Monorail stations have accessible elevator service to all levels. There is level boarding from the platform to all trains. The stroller must be placed in the locked position for the duration of the ride. The Monorail system has armed and unarmed security officers posted at every station.
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How Do I Tell My Children I Have Been Diagnosed With A Lung Disease?

Frequently Asked Questions About Lung Diseases - FAQ About L...
Every person has a different way of handling news that a loved one has cancer. Many parents don't want to burden their child or children with worries and fears about their sickness. But even the youngest children can sense when something is wrong. Get some tips about how to tell your children.
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Is lupus a woman's disease? Do men and children get lupus?

LupusNY.org - Systemic Lupus Erythematosus Foundation
Yes, lupus is mainly a woman's disease, although men can have lupus. The ratio of women to men is 9 to 1, or 90%. Before puberty, boys and girls have the same ratio; that is 1 to 1.
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Is Gastro Esophageal Reflux disease is also found in children?

Laparoscopy Hospital - Frequently asked questions about Lapa...
Yes; This problem is quite common in infants and child as well. Most of the time in infants it results due to faulty feeding techniques.
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Can children use herbal extracts safely?

The Sugar Relief Clinic
ANSWER: Yes! In fact liquids are the preferred method for children to take medicinal remedies.The addition of a pleasant herbal flavouring (fennel, orange and liquorice) make the formula more palatable for both children and adults
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Can all children use the Deva Flowers safely?

FAQ | Questions about Alternative Health and our natural pro...
Yes. Since the Deva Flowers are free of any side effects, they can cause no direct or indirect harm to children of any age, including newborns. In the case of newborns, one drop of Deva Flowers as a dose is sufficient.
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Can children and infants be treated by chiropractors safely?

CSP | Frequently Asked Questions
Yes. Chiropractic care is always adapted to the individual patient. Therefore, techniques used to treat children are more gentle and are specific to their skeletal maturity and size. Children can benefit greatly from chiropractic care, particularly if they are active in sports.
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Can children safely take ImmunityPlus?

Natural Immune System Boosters and Herbs that Boost the Immu...
ImmunityPlus may be used for children from about the age of four and upwards. The recommended dose for children is one drop per age year of the child in about ¼ cup of water or juice - three times daily.
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Can children safely take MiGone Plus?

Natural Herbal Migraine Remedies for Migraine Headache Relie...
MiGone Plus is safe for children 4 years and older to take. The dosage would be 1 drop per age year of the child in a little water or juice, three times daily for 6 weeks. Thereafter, reduce the dosage by half and take twice daily for an additional 6 weeks.
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Can children safely take BioVent?

Adult Acne Home Treatment - Natural Back Acne treatments
BioVent is formulated for children of 4 years and older, but we can suggest our Triple Complex BronchoSoothe as an extremely safe and very effective alternative that is safe for children of all ages and also those pregnant or breastfeeding.
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Can any of the Medicines be safely taken by children?

Your questions answered - Frank Roberts Herbal Medicines
Yes. For medicinal items appropriate for children, dosages for children under 12 years are now given on the label. If over 12 years, full dosage should be taken. Our treatments are not recommended for children of 4 years and under, who should always be presented to the doctor for diagnosis and treatment.
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How many children can use the jump safely?

Inflatable Games located in Elk Grove California, services a...
Most of our jumps accommodate anywhere from 4-6 children under twelve years of age. The older and larger the occupants are, the greater the risk of overcrowding and injury. We recommend no more than 2-4 teenagers and no more than 2 adults per unit. All bouncers are equipped with stepping platforms for easy access into the unit. PLEASE supervise your guests, particularly young children, to insure their safety and good time.
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